Like many, I had an unexpected health decline. After years of ongoing pain and surgeries, I was diagnosed with a connective tissue disorder, called Ehlers-Danlos. While it was something I was born with, it took 54 years to attain the diagnosis. By this time, it had taken a good chunk of my quality of life away. To make matters worse, I was diagnosed with Sarcoidosis the following year. The condition causes my lungs to develop enlarged lymph nodes and granulomas, which can spread at any time and can be fatal. Both conditions have no cure.
Following this incident, my doctor decided I needed to get medication to stop the swelling in my throat. When my husband returned home with the prescription, I discovered that the treatment option differed from what my healthcare provider originally prescribed. I then called the pharmacy and was told that the insurer only approved the cheapest form of the medication. Although a less expensive option, the medication wasn’t compatible with my body and I could not take it. I couldn’t sit back in my chair and I couldn’t breathe. It took three days of arguing with my insurer to get the liquid form of what I needed so that my body could metabolize the medication. I could have literally died in these three days due to the denial of the originally prescribed treatment option.
Though insurers don’t examine or have the knowledge of your medical history, they are able to make medical determinations rather than fulfilling your doctor’s orders.